Just got email from Children'sHospital Boston asking about Sam's progress.They do research on Infantile or Hepatic Hemangioendothelioma.We'll need to provide them with Sam's regular medical records.Hope it will help other babies in the future. Last year they review Samuel's case in their weekly conference and provide our doctors with their opinion and suggestion.Thank you to Dr.Giannoula Lakka Klement -Vascular Anomalies Centre ( website :www.children'shospital.org ) who offer us that chance of getting second opinion for free.We also greatly thanks to Alex whose daughter also had similar disease.Alex refer us to Dr.Klement on our support group athemangioendothelioma@yahoogroups.com Joining support groups help us a lot dealing with this HHE
Subscribe to:
Post Comments (Atom)
Hope God always give the best for baby Sam and also can be a great blessing too to his family and also the others. God bless ^^
ReplyDelete