Hi ! My name is Samuel Ryan Raozen. I am a 6 month old baby boy born in 28 June 2008 in Bandung, Indonesia. I was diagnosed with rare disease, namely Hepatic Hemangioendothelioma. It is a tumor of blood vessels that makes my liver to swell to almost a size of adults.
The Big Liver makes my heart works so hard that my heart also becoming swollen.
When I was 1 month old my parents noticed of my big tummy. I was treated for 2 weeks in my home country then was evacuated to National University Hospital, Singapore where I was diagnosed with the blood vessels tumor. Since it is a rare desease in the world, my case become the first experience for my doctor here in handling Hepatic Hemangioendothelioma.
Doctors said that I have congestive cardiac failure, hypotyroidsm, respiratory distress and bronchomalacia. Due to prolong staying in ICU, my parents now facing financial difficulties.
Despite all conditions, I really want to survive through this all. I want to live. And I want to live a fruitful live that I can grow up becoming a big happy boy. Please pray for me
a BIG THANK YOU from little Samuel
Samuel is staying in PICU, ward 46A, main building, National University Hospital, Singapore.
