VOMIT or BURP ?

These couple days Sam is vomiting his milk several times.Doctor  suspect that Sam cannot tolerate the slow bolus feeding of 50 ml where we pour down the milk within several minutes into the feeding tube. Doctor told us to cut back his milk via the slow bolus and on the other hand increase the feeding via machine.The machine enable the milk to be given to Sam very slowly and continuously. But even after we tried that, he still vomit couple times.Second suspect of the culprit : bloating tummy & the secretion in the airway. Windy weather ,that's all.After giving him red onion water , Sam seemed settle down.Tumbs up to traditional way !

SAM's HORMONE

At 14 April, doctor did another blood test on Sam.His liver panel test show the liver function remains good. While his tyroid ( they test TSH & tyroxine,free ) the growth hormone has become normal . What a good news ! Doctors now increase again his feeding up to 920 ml per day.
 
At hospital they also want to see whether Sam can tolerate breathing without BIPAP machine & even without oxigen.Doctor put him off machines and watch.Well, guess... he still smile and playful after several minutes.His saturation-Oxigen level is swinging up and down as Sam is adjust his breathing but mostly above 93 % which is good. Looks like we are on the right track now. Praise God ! So,we continue practising and weaning him off the machines and even oxygen  
  

MORE MILK FOR HUNGRY SAM

Sam's latest Ultrasound on his liver - done at 13 March - show that there are still some abnormal blood vessels.Doctors told us that it is expected to regress more and disappear as Sam is growing up. Though the liver size is still bigger than normal, Sam is now more tolerate with more feeding. On 27 March as Sam is becoming 9 months old baby, his weigh is still 7.18 kg so doctor decided to give him more concentrate milk.From 540 ml / day to 720 ml / day. Since we need to slowly increase  the feeding, we limit the breathing practising time to 9 hours a day until he can tolerate the feeding. 

End of March -once he was breathless, breath fast with O shape-mouth. Normally ,Sam's breathing is faster than other babies but that time it s even faster ! He seemed quite tired , but Thanks God, after we put him back on BIPAP machine and he vomitted some secretion, his breath was better. He seemed well then. Since now he is recovering from the disease, we believe his breathing will be normal with practising and praying.
 
Last week we saw speech teraphist to learn how to stimulate his mouth and make him ready for oral feeding.Sam has never drink anything orally since he was 1 month old, so up to now  practically Sam is  8 months out of oral feeding. Doctors not yet allow him to get oral feeding at this moment but we need to keep Sam ready for it.Thank you for friends who gave us a teething toy. It s really useful !
 

Picture 1 : Breath without BIPAP-still with oxygen theraphy.
Picture 2 : Smile...