Bloody episode

Sam was admitted to hospital at 1 June 2009. We re so excited and anxious. Unfortunately doctor decided not to take out his trachea tube now since they found out that the airway area just above the trachea was significantly collapsed on the left side.Other area ( including area that is compressed by the once enlarged heart ) is perfectly opened.Doctor explained that it may caused by the prolong use of the trachea plus the trachea size  ( size 5.0-shiley ) which is too big for Sam.So ironic , the trachea could not be taken out that time because of the trachea itself.

So, doctor change the trachea tube to a smaller size tube. Normally it will take more than 1 month for the collapse airway to heal.We need to decide when will Sam go through the same procedure of airway scope as it need to be done under general anesthesia.

We need to pray first asking our good Lord as His timing is always perfect.He knows when will be the perfect time for Sam.Tentatively it will be in August or September.

 

They also did a scope to look at the voice cord and found that the left side was not moving well. It means they could not take out the feeding tube yet.For this kind of scope ( so many kind of scope ! ) we need to wait until July. Meanwhile Sam couldn't take anything orally even for practising.

 

We re quite sad during this admission as many things happened to Sam ;the difficult times Sam was going through when they set his IV plug made Sam struggling and crying.Set IV plug for patient who s been staying in hospital for long time usually very difficult since they have been poked many many times making the feasible vein so difficult to find.This time is a night mare.Many trials with needle, hours of hours crying-up to 1.30 am !, swelling leg, and finally they put Sam to sleep with gas.Then they set the IV plug on his neck.

 

Minor bleeding after the scope procedure which cause his mouth full of blood.The blood streak also come out from his neck. Though this is normal, it is painful to see Sam on this "bloody" episode.Well, At least we re one step closer to "free of tubes" episode 

 

Sam's heart is still slightly dilluted but his cardiac failure is resolved.Two lessions on his liver were seen significantly enlarged but we believe -as our surgeon said it may - that it is the 'dying' tumor change into fibrosis.

 

God is still in control.Sam has been perfectly healed by His word and power.In His time He will proof it.

Delay

Sam decannulation is pending unexpectedly due to full room in ICU. When doctor told us to wait at least one week, we feel disappointed and confused.The schedule was so perfect according to our prayer,and it is sometime unbearable seeing Sam going through the uncomfortable procedures of suctioning and trachea maintenance which sometimes end up with Sam vomit or cry.

 

But still God show us that He is the one who is in control. And His timing is the absolutely perfect time 

So, we are waiting for the confirmed schedule.Tentatively it will be 1 June for admission and 2 June for the procedure.

"Trust Me" that is what God is saying.We do.

Prayer & trusting God- they do change things !

Samuel will be admitted to NUH again at 25 May 2009.Tuesday morning, doctors will do the airway scope in operating theatre. Sam will be under general anesthesia during the procedure.Doctor will find out that Sam's airway is open and in very good condition. After Sam gain his conscious back , they will take out the trachea tube. By the power of Lord Jesus, the creator, Sam will breath comfortably through his nose again. He will be staying in HD ( ICU place ) after that for a couple days.

 

Sam will be free from all tubes as after the above procedure, doctor will take out his feeding tube. After 9 months out of oral feeding, finally Sam will get again the enjoyment of eating and drinking orally : )  About the feeding tube , we have not discuss with doctor yet, but we are praying and believing it will happened soon after the above procedure.

Thank you for all your prayers.Your prayers really works. 

 

Blessings in disguise

Sam was having cough last week. It is terrible.The cough was so strong he often vomit the secretion.The secretion was yellowish and sometimes pinkish due to irritation for we need to do a lot of suctioning.It was really sad to see Sam in such condition.He looked so discomfort and tired.

We called doctor informing the condition asking whether we need to give him Bisolvon or any medication.

Guess what ? The doctor told us that Sam can cough out his secretion is a sign that he does not need trachea tube anymore ! They can decannulate him ! Of course we need to wait until Sam is recovered from his cough.Well, we believe this is how God fullfill His promise at Mark 11 : 22 - 25. We believe Sam is recovered this week so next week he will be ready for this process.

 

 

Off ventilator by the grace of GOD

Finally, Sam is totally off the BIPAP and oxigen machine.Praise Jesus, by His grace He enable Sam to be out of those machines just a week before the rental period expired.The supplier gave us a call asked whether we would like to buy the machine or extend the rental.Joyfully we told him that we would return it instead ! Coupledays ago, the sensor of the oximeter ( machine to monitor oxigen level and heartbeat ) suddenly became error.The thought of buying again the sensor which cost SGD 240 is quite a burden .Yet we ve been tired hearing the alarming sound of it all day long when Sam was using it.Unexpectedly , when we called the hospital informing ourrespiratory therapist, they told us to return it also to the supplier.So, Sam is out of BIPAP,oxigen , humidifier and oximeter this week. How great our living GOD is. Furthermore we pray that Sam can be decanulated soon where the trachea tube be taken out from Sam's neck. It means Sam will start to breath from his nose again and the hole on his neck can be closed.

Vomit episode

Sam still vomit occasionally. Though Sam himself seemed to be fine with it as he often smile after throwing out his milk-sometimes secretions.Doctor suspect constipation as one of the cause and give Sam lactose to soften his stool. This may reduce the gas in his tummy. But looks like it cannot really solve the problem.We ve been trying many things concerning the feeding and secretion suctioning but it still happened.Now we are considering to change the milk and ask doctor whether it is necessary to re check thefeeding tube position.

 

Picture :Reading a book while practising to breath without machines  

VOMIT or BURP ?

These couple days Sam is vomiting his milk several times.Doctor  suspect that Sam cannot tolerate the slow bolus feeding of 50 ml where we pour down the milk within several minutes into the feeding tube. Doctor told us to cut back his milk via the slow bolus and on the other hand increase the feeding via machine.The machine enable the milk to be given to Sam very slowly and continuously. But even after we tried that, he still vomit couple times.Second suspect of the culprit : bloating tummy & the secretion in the airway. Windy weather ,that's all.After giving him red onion water , Sam seemed settle down.Tumbs up to traditional way !